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Sam,
Ashley & Craig |
Mark
Mcgee, Ashley & Family |
Eddie
Money, Ashley & Jo-Anne |
Fee
Waybill / The Tubes |
As founder of Guitars For Life I'm driven
with compassion, dedication, reliability and the spirit to lead GFL to
the highest peaks attainable for each charitable cause that we support.
As GFL approaches our third anniversary of establishment as a non-profit
organization, I find the mission deepening and expanding.
The pace has lead GFL to outstanding performances by legendary
musicians who believe deeply in our causes. As for Guitars for Life's
musicians: They are without any doubt among the greatest humanitarians
on the face of the earth. Can you just imagine what is to come and who
will step forward and lead us further to help the lives of todays less
fortunate children and other humanitarian causes.
~Casey~
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Click
on the flying guitar logo for GFL song and slide show. |
The
purpose of Guitars For Life is to support organizations working for children
with diseases, especially rare diseases and other humanitarian causes.
We also raise public awareness about facts regarding the afflictions
of our beneficiaries. Our missionary efforts are dedicated to those
involved in genetic research, specialized surgery, and to the families
of the afflicted children.
Our vehicle for funding our family of charities is through hosting concerts with
musicians who believe deeply in our cause. With our music, together we will
persevere in our mission to help find cures for these children, because we
are "musicians with a heart."
| Guitars For Life Family of Charities Statement |
The Progeria Project Foundation
Progeria is
a very rare terminal condition.
From the Greek meaning "prematurely old". Characterized by an
appearance of accelerated aging.
For all those directly or indirectly
affected by the condition, we hope to provide pertinent information, solutions,
and a contact base, amongst other things,
for each of you to call upon as your need arises.
Jarcho-Levin Syndrome (Spondylothoracic Dysplasia)
Jarcho-Levin Syndrome is
a genetic disease in which the chest cavity is grossly deformed and
the ribs are fused to the vertebrae. Because the ribs are fused to
the vertebrae the lungs and other vital organs are subject to suffocation
if not treated. Additionally the ribs flare outward opposed to the normal
body structure, and severe scoliosis manifests itself
which creates a dwarf like appearance.
Frequent problems
that arise are upper respiratory infections, pneumonia and an inability
to breathe without an oxygen inhalation machine.
As part of their treatment children with this affliction are
flown to Texas every six months to receive titanium rib implants.
This procedure enables the ribs to contract and expand in tandem with
lungs. Dr. Campbell there, leads all surgical teams involved with
these intricate procedures. Dr. Campbell is the only doctor in the
world successfully implementing this procedure for this rare disease.
Due to the revolutionary nature of this procedure and the frequency with which
it must be performed a great financial burden is imposed upon the families
of children suffering from this disease.
Our dedication on these matters is to raise money for the families,
research and treatment of
Jarcho-Levin Syndrome.
JEUNE'S
SYNDROME FAMILY FOUNDATION
Our
mission is to assist families of children with Jeune's Syndrome
in finding current information and access to the parent support
network. We also intend to financially assist families that need to travel
with their child out of town/state for rib expansion surgeries.
We are a 501(c)3 organization as a project of the Colorado Non-profit Development Center.
Jeune's Syndrome, aka Jeune's Asphyxiating Thoracic Dystrophy (ATD), is an autosomal recessive form of dwarfism. It is characterized by many bone abnormalities, the most pronounced being a long, narrow thorax with a reduced thoracic (rib) cage capacity causing the lungs to not have enough room to breathe. Renal (kidney) and hepatic (liver) dysfunction are present in some cases.
Until recently, children diagnosed with Jeune's Syndrome were given nearly hopeless predictions about their future life. Many would succumb to respiratory infection, or die from liver or kidney failure. Much has been done in recent years to give these children a decent chance in life. Transplants have been successful in treating liver and kidney problems and chest expansion procedures have been developed to give their lungs room to grow. www.jeunesfamily.org
LINKS
YOU'LL JUST LOVE!
A
New Feature to the Site will be our Guitars For Life Web Links . We will
be devoting a page to this feature but to start things off, we'd like
to recommend a favorite site of ours devoted to a man who has inspired
so many of us...the one and only "Mr. Guitar," Chet Atkins.
To pay a visit to the site click on the photo of Chet, or
click here.